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Archive for the 'Adventures in Misdiagnosis' Category

What You Should Know

August 22nd, 2010 - 8:00 pm
Filed Under: Celiac 101
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Excerpt:

I get asked a lot of questions about having Celiac Disease. Unless you or someone you love has been effected by it the odds are most of you don’t know either. Here are some answers to the questions I’m asked most.

Progress Report: 3 Months Gluten Free

December 30th, 2009 - 6:30 pm
Filed Under: Adventures in Misdiagnosis
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Excerpt:

You are what you eat.

I’m still far from 100% but I’ve come leaps and bounds.

My Symptoms of Celiac Disease

November 18th, 2009 - 9:53 am
Filed Under: Adventures in Misdiagnosis
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Excerpt:

I want to write about my experiences because maybe it will help someone else. It took me 30 years to find a diagnosis and if I can help even one person from suffering the same fate then I’m happy.

This list is a hard one to write. I’m still on my way to recovery and won’t feel ‘normal’ for a couple of years yet but I still have always known things weren’t right. I don’t even know what normal is so this list may grow yet as I discover what things improve even if I don’t recognize them as a problem now.

Oh Happy Day!

November 17th, 2009 - 2:06 pm
Filed Under: Adventures in Misdiagnosis
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Excerpt:

I finally have an official diagnosis for what has made my 30 years of life miserable. It IS Celiac Disease. The biopsy I had showed total villous atrophy. That means that every single nutrient absorbing hair in my intestine has been completely destroyed.

Grab a Seat

September 13th, 2009 - 10:24 pm
Filed Under: Adventures in Misdiagnosis
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Excerpt:

So she told me everything looked swollen but good. This is good and bad. It’s great because I don’t want anything to be wrong, but it sucks because there IS something wrong and I just want to know what it is. That doesn’t mean nothing was found it just wasn’t seen with the naked eye. We await the pathologist. My GI suspects one of 2 things, the same 2 things I keep saying. Celiac Disease, or a Non Celiac Gluten Intolerance (NCGS or NCGI).

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