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Archive for the 'Adventures in Misdiagnosis' Category

Progress Report: 3 Months Gluten Free

December 30th, 2009 - 6:30 pm
Filed Under: Adventures in Misdiagnosis
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Excerpt:

You are what you eat.

I’m still far from 100% but I’ve come leaps and bounds.

My Symptoms of Celiac Disease

November 18th, 2009 - 9:53 am
Filed Under: Adventures in Misdiagnosis
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Excerpt:

I want to write about my experiences because maybe it will help someone else. It took me 30 years to find a diagnosis and if I can help even one person from suffering the same fate then I’m happy.

This list is a hard one to write. I’m still on my way to recovery and won’t feel ‘normal’ for a couple of years yet but I still have always known things weren’t right. I don’t even know what normal is so this list may grow yet as I discover what things improve even if I don’t recognize them as a problem now.

Oh Happy Day!

November 17th, 2009 - 2:06 pm
Filed Under: Adventures in Misdiagnosis
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Excerpt:

I finally have an official diagnosis for what has made my 30 years of life miserable. It IS Celiac Disease. The biopsy I had showed total villous atrophy. That means that every single nutrient absorbing hair in my intestine has been completely destroyed.

Grab a Seat

September 13th, 2009 - 10:24 pm
Filed Under: Adventures in Misdiagnosis
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Excerpt:

So she told me everything looked swollen but good. This is good and bad. It’s great because I don’t want anything to be wrong, but it sucks because there IS something wrong and I just want to know what it is. That doesn’t mean nothing was found it just wasn’t seen with the naked eye. We await the pathologist. My GI suspects one of 2 things, the same 2 things I keep saying. Celiac Disease, or a Non Celiac Gluten Intolerance (NCGS or NCGI).

Hallelujah

September 11th, 2009 - 9:00 am
Filed Under: Adventures in Misdiagnosis
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Excerpt:

I guess Health vs Knowing is no longer an issue. The biopsy has been rescheduled from December 30th to TODAY!! BOOYA!

Off I go to be prodded.

Hopefully all of this mess is almost over.

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